ABILHAND-Kids

COA At-a-Glance

Evidence of cognitive interviewing of draft instrument in target patient population

Evidence of internal consistency

Evidence of test-retest or inter-rater reliability

Evidence of concurrent validity

Evidence of known-groups validity

Evidence of ability to detect change over time

Evidence of responder thresholds

Inclusion of the COA in product labelling

Daily function
Self-care

Overview

Instrument Name: ABILHAND-Kids

Abbreviation: ABILHAND-Kids

Points for Consideration:

Quick and easy to administer; available in multiple languages.

Description of Tool:

The ABILHAND-Kids is an ObsRO, developed to measure manual ability. Parents are asked to rate their child's difficulty on a 3-level scale "Impossible," "Difficult," and "Easy" for 21 functional tasks. There is also the option to rate it as "?" if the child has never attempted the activity. Activities listed range from opening a jar, unwrapping a chocolate bar, sharpening a pencil, zipping up pants, to filling a glass with water. Higher scores represent greater manual ability.

Minimum Qualification Required by COA Administrator: No degree requirement

Comment:

Adult versions of ABILHAND have been validated in rheumatoid arthritis, in chronic stroke, in systemic sclerosis, in neuromuscular disorders (both children and adults), and in patients with hand surgery

Year: 2004

Objective of Development:

To measure manual ability for children with upper limb impairments

Population of Development: Age range (therapeutic indication):

6-15 years (Cerebral Palsy)

Pediatric Population(s) in which COA has been used:

Nervous system diseases; Wounds and injuries; Cardiovascular diseases; Musculoskeletal diseases; Congenital, Hereditary, and Neonatal Diseases and Abnormalities; Pathological Conditions, Signs and Symptoms; Skin and Connective Tissue Diseases

COA type: ObsRO

Number of Items 21

Mode of Administration: Self-administered

Data Collection Mode:

Time for Completion: Not reported

Response Scales: 3-point verbal rating scale ranging from 0

Summary of Scoring:

Available Scores:
Global score ranging from 0 to 40 after Rasch conversion

Weighting:
No

Score Interpretation:
Higher score = Better manual ability


Content Validity

Evidence of Literature Review: None identified

Evidence of Instrument Review: Yes

Evidence of Clinical or Expert Input: Yes

Evidence of concept elicitation in target patient population: None identified

Evidence of a Saturation Grid: None identified

Evidence for Selection of Data Collection Method: None identified

Recall/Observation Period: Last 3 months

Evidence for Selection of Reponse Options: None identified

Evidence of cognitive interviewing of draft instrument in target patient population: Yes

Evidence of Preliminary Scoring of Items and Domains: Yes

Evidence related to respondent and administrator burden: None identified

Evidence of a Conceptual Framework: None identified

Evidence of an item-tracking matrix: None identified

Evidence related to item selection: Yes

Evidence of re-testing the final version: None identified


Reliability

Internal consistency (Cronbach's alpha): Yes

Evidence of internal consistency:

Test-retest Reliability (ICC):

Arnould (2004)
- Pearson correlation coefficient: 0.91
- Was a definition of stability applied to identify stable patients: No
- Time frame or interval between the two administrations: 1 month
- Population/Disease: Patients with Cerebral Palsy ; n=113
Age ranged: 6-15 years

Inter-rater/ inter-interviewer reliability (kappa):

Not reported

Evidence of test-retest or inter-rater reliability: Yes


Validity

Concurrent validity (convergent, divergent):

None identified

Known-group validity:

ArNould (2004)
1. Measure/Groups of patients: Gross Motor Function Classification System (GMFCS)
- A priori hypotheses: Not stated
- Were hypotheses confirmed: Not applicable
- Results: Pearson's correlation coefficient: r=0.640, p<0.001 2. Measure/Groups of patients: Type of Cerebral Palsy (n: Not stated for each group) - A priori hypotheses: Not stated - Were hypotheses confirmed: Not applicable - Results: ANOVA F= 9.621, p<0.001 - Population/Disease: Patients with Cerebral Palsy ; n=113 Age ranged: 6-15 years

Evidence of Translatability Assessment: None identified

Evidence related to missing data: None identified

Evidence for Selection of Recall Period: None identified

Evidence of Administration Instructions and Training Provided: None identified

Evidence of concurrent validity: None identified

Evidence of known-groups validity: Yes

Evidence of ability to detect change over time: Yes


Ability to Detect Change

Ability to detect change (Responsiveness):

Bleyenheuft (2017)
- Population/Disease: Children with unilateral spastic cerebral palsy; n= 98
- Time horizon: Baseline T1, after Hand and Arm Bimanual Intensive Therapy Including the Lower Extremities (HABIT-ILE; T2) and at follow-up (considered as stable period; T3)
- Group definition: Correlation between ABILHANDS-Kids and PEDI in the group of 6-12 years children
- Statistics used: Spearman's coefficient correlation
Results: Significant (p= 0.003) correlation was found between ABILHANDS-Kids and PEDI between T1 and T3: r= 0.430
Age ranged: 6-19 years


Responder Thresholds

Evidence of responder thresholds: None identified


Reference(s) of development / validation

ArNould, C., Penta, M., Renders, A., & Thonnard, J. L. (2004). ABILHAND-Kids: A measure of manual ability in children with cerebral palsy. Neurology, 63:1045-1052
Full Text Article: https://www.semanticscholar.org/paper/ABILHAND-Kids-ArNould-Penta/ad310eb60aec3b35e79caff95e114756c31dce0a

Bleyenheuft Y, Gordon AM, Rameckers E. Measuring changes of manual ability with ABILHAND-Kids following intensive training for children with unilateral cerebral palsy. Dev Med Child Neurol. 2017 May;59(5):505-511
Full Text Article: https://pubmed.ncbi.nlm.nih.gov/27896811/


Other references

See (PubMed results)
https://pubmed.ncbi.nlm.nih.gov/?term=ABILHAND-KIDS


Inclusion of the COA in product labelling

None identified


Existence of Scoring / Interpretation / User Manual

Yes


Original language and translations

Original language:
French

Translations:
Arabic
Chinese
Danish
Dutch
French
Italian
Persian
Polish
Portuguese for Brazil
Slovenian
Spanish for Colombia
Spanish for Mexico
Spanish for Spain
Spanish for the USA
Swedish
Turkish
Ukrainian


References of translations

Arabic:
Alnahdi AH, Alhusaini AA, Alshami A, Yousef B, Melam G. Cross-cultural adaptation and measurement properties of the Arabic version of the ABILHAND-Kids scale. Disabil Rehabil. 2020 Jul;42(15):2224-2231
Danish:
Hansen AØ, Poulsen HS, Kristensen HK, Lauridsen HH. Danish translation, adaptation and validation of the ABILHAND-Kids questionnaire for children with cerebral palsy. Disabil Rehabil. 2020 Jun 22:1-10
Persian:
Mohammadkhani-Pordanjani E, ArNould C, Raji P, Nakhostin Ansari N, Hasson S. Validity and reliability of the Persian ABILHAND-Kids in a sample of Iranian children with cerebral palsy. Disabil Rehabil. 2020 Jun;42(12):1744-1752
Turkish:
Şahin E, Dilek B, Karakaş A, Engin O, Gülbahar S, Faruk Dadaş Ö, Peker MÖ, El Ö. Reliability and Validity of the Turkish Version of the ABILHAND-Kids Survey in Children with Cerebral Palsy. Turk J Phys Med Rehabil. 2020 Jun 24;66(4):444-451
Gün F, Temizkan E, Bumin G. Validity and reliability of the Turkish versions of Assessment of Children's Hand Skills and Children's Hand-Skills Ability Questionnaire in children with hemiplegic cerebral palsy. Child Care Health Dev. 2021 Mar;47(2):191-200
Öksüz Ç, Alemdaroglu I, Kilinç M, Abaoğlu H, Demirci C, Karahan S, Yilmaz O, Yildirim SA. Reliability and validity of the Turkish version of ABILHAND-Kids' questionnaire in a group of patients with neuromuscular disorders. Physiother Theory Pract. 2017 Oct;33(10):780-787
Ukrainian:
Hasiuk MB, ArNould C, Kushnir AD, Matiushenko OA, Kachmar OO. Cross-cultural adaptation and validation of the Ukrainian version of the ABILHAND-Kids questionnaire. Disabil Rehabil. 2021 Feb;43(4):576-585


Authors and contact information

Author:
Massimo Penta
Institute of Neurosciences (IONS)
Université Catholique de Louvain, Secteur des Sciences de la Santé
Place Pierre de Coubertin 1
B-1348 Louvain-la-Neuve
Belgium
E-mail: massimo@arsalis.com or massimo.penta@uclouvain.be

Contact:
Institute of Neurosciences (IONS)
Université Catholique de Louvain, Secteur des Sciences de la Santé
Place Pierre de Coubertin 1
B-1348 Louvain-la-Neuve
Belgium
E-mail: abilhand@rehab-scales.org


Website

http://rssandbox.iescagilly.be/abilhand-kids.html


Review copy

Review copy and existing translations available here: http://rssandbox.iescagilly.be/abilhand-kids-downloads.html